As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



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There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

To op or not to op?

February finally came and Kaycee was due her ENT op, what we had waited two months for.    She was having a camera down to check all her airways and make sure there was no obstruction to her airways and also to check the bottom of her lungs for infection.   She was going down Friday afternoon so she had to be starved all day.   The Consultant came up and asked questions about Kaycee her health, background etc.  They assessed her and then said they will be back in a while to take her down.    A few hours passed and Kaycee hadn’t gone down so we asked the nurses to chase up. 
The nurse came back and said she is down last on the list.   She thought this was because she was complex due to her history so they were doing the kids first which were easier to assess.    The consultant came up at 6pm, we thought great here we go.    No how wrong were we.    He told us because of bed space in PICU or HDU Kaycee wouldn’t be going for the op today.   We couldn’t believe it.  Not only had Kaycee been hungry all day long and starved but we had mentally prepared ourselves for the wait whilst Kaycee was under.    
He told us that his list for Monday looked more promising and that he wouldn’t ensure that a bed was free for Kaycee.    This didn’t make it ok we were so angry with them.   We couldn’t see why this wasn’t established earlier to avoid all this stress and anger.  
Monday came and an ENT consultant came up and explained that they were no room on the Monday list but another consultant was doing an evening list starting after 6pm and that she would be on that.    Again Kaycee was starved from 2pm.   We waited and then the Consultant came back about 6:30pm.   Assessed her and said he will be calling her down shortly.    7:30pm came and Kaycee went down.    It was only a short op and she was out for 8:40pm.    So we met her in recovery.   
At first they had a PICU doctor there to assess Kaycee and she was going to PICU, then she was going HDU.   An hour passed and they decided that she was going to the ward.    The problem here was she had two different beds booked on a ward and both had been given away and because she was an isolation patient she needed a cubicle and cubicles in hospitals are very hard to find as most of them are used by long term patients.    Four hours passed and Kaycee wasn’t looking the best.   PICU was called and a doctor came and assessed Kaycee.   She was breathing harder than she was earlier.   The decided to send her PICU for a few hours in case she needed to go back on the vent.    So PICU (3rd Admission) it was.   
As it happens before she got to PICU she started to sort herself out again, but because the bed was booked it was decided that she would go anyway and it was more for observation more than anything.    Kaycee got discharged from there back to a ward within about 4 hours of her being there.  

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