As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



About Me

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There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

Meeting my gorgeous girl for the first time ...



After giving birth I wasn’t allowed to move for a few hours because I had an epidural, obviously I couldn’t feel my legs or anything.  Michael went up and seen Kaycee whilst I was spending time with Corrie.   This is where our differences where.   I had spent time with Corrie and bonded with her and Michael was with Kaycee bonding with her.   I found it easier with Corrie but I think that’s because I knew she couldn’t hurt me as much as Kaycee could.  

It wasn’t the first time I had been in SCBU because the day before I got shown around and got everything explained.  I remember meeting a little lady called Faith, I remember thinking wow she’s tiny but so gorgeous.   I couldn’t get over how small a baby could be and be so perfect.   I never stopped talking about baby Faith all that night, I wanted to go see her again but obviously I couldn’t.  

The nurses took me up in wheelchair to see Kaycee, and even though I had seen Faith the day before I was a little bit frightened, but looking forward to seeing my other girl. 

I remember getting into the room and I felt sick, I felt like the room was tiny and that everyone was staring at me.  I remember trying to stand from the wheelchair and then suddenly sitting and asking the nurses to get me some water.   I was horrified.    I looked at Kaycee and burst into tears.  I was so upset because Kaycee didn’t look like Corrie.  Mainly because she was hooked up to a ventilator and had wires everywhere.   I was heartbroken because I remembered how tiny Faith was and Kaycee was very tiny compared, I don’t know why that upset me so much but I was very upset by it.  I remember whispering to Michael that I wanted to go back downstairs, he asked me why and I didn’t know why, but then I kind of shouted it and told him I need to go downstairs Corrie needs me.   I felt scared weak and just wanted to see Corrie lying peacefully in bed.  Its not that I didn’t like Kaycee I was very scared.  Most people who have experienced this will realise what I mean.  The whole walking into the room, seeing a baby that’s way too early hooked up to many machines with wires hanging out everywhere was terrifying. 

I didn’t go back up to Kaycee again till late evening, once I had got my head round the whole situation.   This time was a bit easier, it felt like we was the only people in the room.   I walked over to Kaycee and looked at her.  I couldn’t believe how tiny she was, but yet so perfect.   The nurse came over and asked me if I wanted to touch her.   I didn’t think you were allowed to.  I remember washing my hands thinking what if I break her.    Putting my hand in for the first time was like putting your hand in something off I’m a Celeb, pulling it back and egging yourself on to touch the object inside, it was very scary.   I touched her hand and couldn’t believe that she gripped me, her whole hand covered just my finger nail.  Her hands were perfect with tiny little nails on.   She felt so soft and light to touch.   I instantly fell in love.  Even though I loved her I still didn’t feel like she was mine.    I had already felt robbed of a pregnancy and of Corrie, I just couldn’t accept that she was mine. 

Everything felt so surreal.    At the time of this we was so naive to all the situation and never had much medical background to it all, which I feel knowing what we know now was probably the best situation to be in.  To be a parent that looks like a rabbit trapped in headlights, to think that its ok get to your due date and you can take your baby home, no problems and live your life like it was planned.   I wish it was so simple like that.  

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