As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



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There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

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With Kaycee being our first baby and all the plans you have whilst pregnant of how you will cope and how you will do this just went out of the window.   We didn’t have a set regime in place and if we did we didn’t follow it from hospital.   Within hours of being home it felt right and the 9 ½ months we spent on SCBU seemed miles away.   Kaycee on the other hand loved her new house.  With being a bit older you could see the difference in her, it was like she had been given a new lease of life.   She was more interactive.   When we put the TV on, wow it was like she had won the lottery.   She found it amazing lying there on the rug.   
The first night was hard.   Kaycee was too big for a moses basket and her bedroom was all done and the cot was in there.   So we decided we would camp out in Kaycee’s room.   We got all our bedding and made a bed on the floor and put her in bed.      New surroundings got the better of Kaycee and she wasn’t impressed with the massive change in her life.  We had a very restless night. 
A few days passed and Kaycee seemed to settle.   We got ourselves in a little routine and was finding it pretty straight forward.      We loved our little family life at home, it was amazing.   
Things soon felt normal again and off Michael went back to work.

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