As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



About Me

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There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

Something inside screaming get help.

Kaycee was home for about 4 weeks straight and then she seemed to get a bit snuffly.  Obviously this was a sign she had caught a bug or something and from past experience we were a bit anxious to let her ride it out.    We have help from the Community Nurse due to her being on home oxygen.   So I rang them and asked if they could bob round just for a fresh pair of eyes point of view. 
As soon as they came they knew she wasn’t right.  They put her oxygen saturations monitor on and she was sitting low 80’s.   I could feel my body tense up and I felt sick.     The nurses told me that they would need to get her to the hospital.    The rung the ambulance because she is on the direct admission list the ambulance knows of Kaycee and knows to come ASAP. 
On arriving at the hospital we were directed straight to a ward.   She was admitted into a cubicle and seen by the doctors.   All the doctors knew Kaycee because of neonates so that was probably the only advantage of being on this ward.   It was hard to adjust to how they worked because on a neonatal unit they were closely watched.  Here you were left to defend for yourself, well not that extreme.  
Kaycee had loads of tests done, poked all day and then they finally decided she had bronchiolitis.  As we have learnt over the months every baby admitted to Oldham has this.   At the time we were heartbroken.  She had already been through so much and to top it off here we was back in OLDHAM.   All the memories from that horrible day were hanging over me.    
Kaycee’s oxygen went up sky high but they just put a mask on her, she tolerated this quite well.   She was treated with antibiotics and within the week stay she was stable and back in her normal amount of oxygen to go home.   So off we back went home.   
10 days passed and Kaycee seemed to be back to her normal self.  

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