As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



About Me

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There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

Long stay at Hope

When we arrived at Hope Kaycee was 5 months old.  So no longer was classed as a neonate.   So ideally she should have been transported to PICU when she initially deteriorated at Oldham.   I remember one of the nurses constantly asking us when is Kaycee getting transported back.   Of course after everything we went through at Oldham I did not want to go back to that place at all.   I was too scared to even show my face in that place never mind put my daughter’s life back in their care.    We spoke to the doctors and it was agreed that with everything Kaycee had been through that they would get her back to where she was before the episode and then speak about it again.  
In March Kaycee threatened to be nearly vented again, due to blowing up with fluid.   She managed on bipap and the tiny blip just caused her to be set back a little.   At this point loads of other stuff had gone on (too much for me to go into detail about and to be honest it angers me too much)  and Hope had decided to adopt Kaycee under their care and she was allowed to be discharged from Salford.   This meant never going back to Oldham at all.  We obviously were happy about this.    Eventually in April (Easter) Kaycee finally came off the cpap and was in oxygen all day and night.   This was the first time EVER Kaycee had been this well and again a discharge meeting was set up for home!  This time everything was in place and everything was sorted properly.  Even to the point of oxygen being fitted in the house and her bedroom being complete.  
Kaycee’s date was set for going home 20th May 2011.  Which meant my little girl would be going home at 8 months old.   This meant that sleep studies had to be done to determine what oxygen she was going to be prescribed with at home.  This was a nightmare because didn’t doctors had different requirements.  So it took a good 4 weeks of traces to determine this.  Finally the right prescription of oxygen was agreed and Kaycee was all set to go home on the 20th.  Which was 4 days away.   We were finally allowed to room in downstairs with her.    This was amazing.   I don’t think me and Michael slept all night.   We were so excited to have reached this point, considering how bad Kaycee was just 4 months back.  We were in heaven.

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