As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



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There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

Goodbye Discharge Hello Ventilator …

Wednesday came and Kaycee was very very bad.  The night staff rung me to come upstairs and see if I could settle Kaycee.  We got upstairs and the night staff said that a doctor was coming in early to speak to us.   What she said to us was not what we wanted to hear.   We were in shock.  Yet again our baby girl was critical. 
We found ourselves sat back in the parent’s room where we had waited ever so patient for 4 hours back in February asking the same questions, going over events in her life and crying.  
Casually walking past was Kaycee’s consultant.   She was surprised to see us and joked “We not got rid of you guys yet” … She didn’t need telling as she could tell by our faces.  Her face dropped and she raced off.   The next thing the door flew open and she sat by us.  She held my hand and said “its not good, its not good its not good its not good” … I looked at her all confused and I could see her eyes were filling.   She explained that Kaycee’s heart rate was very low and so were her oxygen saturations.  I froze.   I actually couldn’t take it in what she was saying.    Then the nurse came in who had her that morning.  She was trying to keep compose but when she seen us she too burst into tears and told us the news we had been dreading to hear.   She told us Kaycee wasn’t good, and it didn’t look good.  She couldn’t talk.  We all sat there and Kaycee’s consultant was praying.  It was silent.  A deadly silence that no one seemed to want to break.  Then another doctor came to the door and said “Kaycee’s ok, that was a bit rocky but she is back and stable on the vent”.   We all looked at each other and I just burst into tears.   
Over the next few days we had to deal with seeing parents we had said bye to giving us their regards and how sorry they were to see us back where we started.   By this time 5 months on everyone knew us, all the staff were close to us and everyone loved Kaycee.  Everyone was saddened by our story so far.   I just felt like we were never going to achieve our goal and get her home.   I just shut everyone out.   We had worked so hard to get her to the home stage and then back 5 months we go.  I had so much anger inside me for events that had happened that we never acted upon at the time.  
Kaycee did really well this time on the vent she only needed it for 7 days.    She recovered very well considering how poorly she was.   This time she didn’t need the steroids to get her off the vent.    The doctor told us that he had never heard of any baby to do what Kaycee had just done.    3 weeks passed and she went from Bipap to CPap to being off her onto her oxygen 24/7.      She then had her dreaded sleep studies and they were better than the previous ones.   The oxygen was agreed and the doctors told us we could take her home Monday.   Again we were told Kaycee could room in with us and get used to her downstairs.   Due to the last time we were a bit scared.   The nurse came over and told us that they had spoke to the doctors and the have agreed that we didn’t need to room in with her and that we could take her home THE NEXT DAY!!!!   

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