As most of you know Kaycee Brooks is 18 months old (corrected age 14 months, meaning if she was born on her due date this would be her age now) She is a surviving twin and was born at 25 weeks and 2 days. Her sister, Corrie (said like the boy’s name Corey, not after my favourite soap … ha) sadly passed away in the womb at 25 weeks.



Kaycee has spent most of her life in hospital. In total she has spent a mere 9 weeks at home on and off, the longest stretch being 10 days without a Hospital admission. She has given the hardest strongest fight of survival and still to this day (01.03.2012) Kaycee is still fighting and literally living life on the edge.



I thought it would be nice to let people know her full background and share her life experience properly, just for future reference for Kaycee to read back on when she’s a big girl and also to help or guide, anyone who will either experience any part of this situation.



The reason for me publishing a blog, with a donation button on is not out of pure cheek, not us being a charity case but simply to raise a bit of money for Kaycee, her future, her care (if we need to seek quicker care privately) travelling and living expenses whilst we hold vigil besides Kaycee. I do not want anyone to think we are begging, I just feel with all the support we have people will understand, and not take pity but want to support us. We are hospitalised and we aren’t living in “real life” and people are always always asking what can we do to help. So I spoke to a support worker and she suggested this and to be honest it has took me a good number of months to actually do this, to sit down and re-live Kaycee’s life and to relive my experience with my other daughter Corrie.



It does bring back a lot of painful but happy memories but also angers me at the same time because I do see it from other peoples points of view, when I sit down and think of our situation and see that we have and are in such a bad position in life. But we have been dealt with these cards in life and we have to deal with that.



I am only as strong as I am because I have the most amazing daughter anyone could ever dream of having and I think this applies to most premmie parents or long term sick children. You truly are blessed to have a special child. I totally believe that we are blessed and I do not wish to change anything in my life. I just wish better health for Kaycee and may be one day be that in 1 month’s time or 10 years we will live a normal happy life as a family at home. But in the meantime I will make sure every 24 hours of my daughter’s life has a special memory. Not only does she inspire her army of fans but she is a true inspiration to us as parents. And the most warmest thought is I have two of these girls, and although Corrie isn’t here, I know she is exactly the same as Kaycee and wherever she is she is being a cheeky girl and making everyone love her just as much as Kaycee is doing down here with us.



I am truly truly blessed to be her mummy.



About Me

My photo
There are no classes in life for beginners: right away you are always asked to deal with what is most difficult.

A wee introduction to my lady ...

Hello, I thought I best start putting some posts on here just to let people know a bit about our gorgeous little lady Kaycee.   

She is an ex prem, micro prem born at 25 weeks weighing 1lb 4oz (590grams).   She spent a long time in SCBU (9months) before coming home.   She has Severe Chronic Lung Disease, Pulmonary Hypertension (which is a life threatening disease if not treated correctly), She has a ASD (atrial septal defect - Hole in the heart) she is Oxygen Dependant, and globally delayed due to premiturity.  She has other medical problems but they are the main ones which contribute to her being hospitalised a lot of the time.  

She has been in hospital the majority of her life, all across the NorthWest, both as a Neonate and as a Infant.   She is currently in PICU (intensive care).   

She is an amazing little character for someone so small and for what she has been through in life.   She NEVER crys and if she does you know she is struggling with something.   She always smiles, shes a fantastic peoples person and makes everyone smile & melts the hearts of everyone she meets, even the toughest of characters like Doctors.  She fights to be here 24/7,and to date has never given up.   She fights everything shes challenged with and bounces back bigger and better and much more lovable.   She truely is amazing, and thats not us being biased.  

Shes taken over my page on Facebook and I decided to create her a blog.   Just so I could probably get more information out on here and quite possibly as this blog travels through family, friends and complete strangers we might actually bump into someone who has experienced this rollercoaster of a journey and might actually relate to our pain, anger and frustrations.  Because as it stands at the moment, we feel alone, we feel its only our premature baby, our strong little lady fighting the fight alone.   I would love more than anything for someone to find this page who could give us a piece of mind of what the future might be like.   As it as at the moment, we life everyday as if its the last and love her more and more.  We NEVER give up, we NEVER cry near her, We are ALWAYS positive around her telling her how proud we are to be chosen to take this horrible journey with her.  

I'm strong because my lady is amazingly strong, she is such an inspiration to us as parents so god knows what she is to people who have never met her.  

Anyways, I will try and get the story from the beginning on in bits.  Just so I can hopefully find someone in this world to have experienced or is experiencing this hell.  

As much as low as low and tough as tough it gets, everyday is worth the pain just to have my baby girl in my life.  I love her with all my heart and I am the proudest mummy in the world.

Thanks Everyone again for your support.  Feel free to contact me.

xxx

4 comments:

  1. Anonymous4 March 2012 at 07:25

    This story is so touching and so emotional and I wish you all the best and luck for the future xxx

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  2. Anonymous5 March 2012 at 16:28

    Your little girl is amazing and incredibly beautiful! I have my fingers and toes crossed that you find someone who can share your pain and emotions and also that Kaycee grows stronger and stronger! Xx

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  3. Graham7 March 2012 at 13:51

    How did u get a decent connection to do all that in there, as people who have experienced Wat u going through, keep strong and smiling however hard it gets, give Kaycee plenty of hugs and tell her Alex is looking down on her, u know where we r if u want a chat, love Sue and Graham

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  4. Anonymous13 April 2012 at 13:25

    My mum pointed out your story today in the Oldham Chron. Almost 5 years ago we were like you on the front page with my little boy who was born at 24 weeks in Oldham hosital. He had spend 8 month in hospital and finally came home on home oxygen. For a parent that has experienced this, there is no words to descibe what it's like and what you feel. A rollercoaster of emotions.... The first thing the doctors and nurses say to you is that you will experience this rollercoaster and you truly think " how can it get worse than this" but you can not understand and comprehend the understanding the real meaning of this word. I should finish this by telling you that now my boy is s bouncy little boy like any other little boy of his age. I tell him that god sent an angel down to look over him and he says a little prayer every night to god and the angel and give thanks to his live. Now, we were never particularly religious, but during all this time I myself had prayed on many occasion and still feel that I need to be grateful for the gift I have had. Now we will also say a little prayer for Kaycee and wish that you can look back at this experience as we have. It sounds likeyou are keeping strong and our heart is with you and your family.

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